Isabella has been living with a very rare disease since she was five years old – vasculitis and livedoid vasculopathy – which cause her severe pain, hard-to-heal wounds, and constant skin damage. So far, only a few children worldwide are known to have had livedoid vasculopathy, but there is no data on having both diagnoses – vasculitis and livedoid vasculopathy – simultaneously…
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So far, there is no confirmed treatment for Isabella, so the diseases are controlled only symptomatically – pain relief and wound care. There are days when the girl cannot stand or walk because of the pain, but her love for music is so strong that she puts on her stage costume, takes the microphone in her hand, and steps onto the stage.
“Silent Scars” is not just a song. Isabella wrote the lyrics herself. The nine-year-old chooses every day not to let the pain lock her inside, and to turn her experiences, feelings, and what sometimes cannot be expressed in words into music.
Stano, who contributed to the creation of the song, does not hide his admiration for the girl’s talent.
“When you understand what she is singing about, it seems incredible that a nine-year-old child can create such lyrics. Even more amazing is Isabella’s voice and the quality of her performance. That cannot be learned,” says Stano.
According to Isabella’s mother, the meeting with the performer was special for the girl – Stano allowed her to freely express her feelings and feel the song as Isabella herself sees it.
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Along with the sensitive and emotionally charged song, a music video is also released. Isabella’s dreams are big – she wants to be a well-known, recognizable performer, create music, and sing.
“I think we have a real chance, we as Lithuania, to become known worldwide not only because of basketball. This is a miracle that has proof, and the proof is this video clip.” – S. Stavickis-Stano does not hide his admiration.
Isabella’s song and music video will be available to listeners on all music platforms starting today.
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You can listen to the song here:
